Tag: Rare and Orphan Diseases

Sick Migrants Undergoing Lifesaving Care Can Now Be Deported

LOS ANGELES — Maria Isabel Bueso was 7 years old when she came to the United States from Guatemala at the invitation of doctors who were conducting a clinical trial for the treatment of her rare, disfiguring genetic disease. The trial was short on participants, and thanks to her enrollment, the Federal Drug Administration eventually […]

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